Patient Advocate Services
Empower your health journey with
for people with Ehlers-Danlos Syndrome and other chronic and complex conditions
Let’s amplify your voice
so your health concerns are heard—and actually addressed.
As someone living with Ehlers-Danlos Syndrome or another chronic or complex condition, you’re used to being ignored.
Some providers just don’t know how to help you. Other's don’t care to try.
You deserve more from the healthcare system. And we’re here to help you get it.
As your patient advocate, we will do our darndest to ensure your voice is heard, your symptoms are healed, and your needs are met.
Let us handle the complexities of your EDS care, so you can focus on what matters most: your health and wellbeing.
we’ve got your back
(And your front. And the rest of your body.)
Whatever health (or healthcare) concerns you’re dealing with, you can trust our team to help you handle them well.
Your personal patient advocate will assist with anything you need, from coordinating EDS care to fighting for the treatments you need.
Because everyone deserves a strong advocate in their corner—you most of all.
Coordinating appointments
Managing the logistics of your care can be overwhelming. Our patient advocate can help you schedule and organize your medical appointments, ensuring you get the care you need without the stress.
communicating with providers
Understanding and relaying medical information can be complex. We bridge the gap between you and your healthcare team, ensuring your questions are answered and your concerns are heard.
understanding your diagnosis
A new diagnosis can feel overwhelming. We help you break down medical terminology, provide clarity on what it means for your health, and empower you to make informed decisions.
exploring your treatment options
Every patient deserves to understand their options. We guide you through potential treatments, therapies, and interventions so you can choose the path that aligns best with your needs and goals.
navigating insurance claims
Dealing with insurance can be frustrating and time-consuming. Our patient advocate assists with claims, appeals, and pre-authorizations to help you access the care and coverage you deserve.
accessing resources + support services
From financial assistance programs to specialized care services, we connect you with the right resources to support your journey to better health.
why you may want a patient advocate
✔️ Simplify your EDS healthcare
✔️ Save time researching treatment plans
✔️ Discover new, effective care options
✔️Raise concerns you haven’t considered
✔️ Prevent errors, missteps, and frustration
✔️ Resolve insurance disputes or conflict with providers
✔️ Keep track of your visits and test results
✔️ Get extra financial, social, and legal support
✔️ Safeguard your medical rights
✔️ Ensure your safety, security, and success
You just have a helpful sidekick now
You’re still the hero of your own health—
Meet Miranda •
Meet Miranda •
Our resident patient advocate, Miranda Couture, is here to guide you through your healthcare journey. Driven by a deep passion for helping patients navigate the complexities of EDS and other conditions, she is currently working toward becoming a Board-Certified Patient Advocate (BCPA) to further deepen her skills.
With a background in public health (B.A.) and education (M.Ed.), Miranda has gained a strong foundation in understanding health systems and communication strategies that promote better outcomes for patients. Her approach is grounded in active listening, empathy, and a genuine desire to understand your unique needs. She believes in meeting you where you are, offering support with compassion, and ensuring your voice is heard.
Beyond her professional goals, Miranda finds balance and joy in hiking, foraging, studying naturopathic medicine, diving into foreign languages, exploring different cultures, and learning in all its forms.
Our Services
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Not sure if patient advocacy is right for you? Our free 30-minute Empowerment Session gives you the opportunity to discuss your needs, ask questions, and explore how our advocacy services can support you. Whether you're feeling overwhelmed by medical logistics, insurance issues, or care coordination, this no-obligation session helps you determine the best next steps—with expert guidance from our Patient Advocate, Miranda.
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This 90-minute session provides an in-depth exploration of your healthcare experiences and advocacy needs. Following the consultation, we will recommend one of our tailored patient advocacy memberships or packages, ensuring you receive personalized support aligned with the complexities of your case and specific requirements.
Investment: $325 -
Recommended for those managing care with up to two specialists.
This tier is ideal for individuals who need foundational support in organizing their healthcare journey. You’ll receive guidance and assistance with:
Appointment scheduling and coordination with up to two specialists
Preparing for medical visits, including questions to ask your provider
Requesting and organizing medical records
Basic insurance navigation, such as verifying coverage for appointments
Finding specialists or resources that align with your condition(s)
Advocacy in provider communications, such as requesting referrals or follow-ups
Investment: $495/mo (3 month commitment)
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For those with more complex medical needs, this level of support includes everything in Essential Advocacy, plus:
Coordinating care between multiple specialists to ensure seamless communication
Insurance support, including appeals, pre-authorizations, and claims issues
Tracking symptoms and treatments to improve medical decision-making
Researching treatment options, clinical trials, or specialized providers
Assistance with disability accommodations, including work/school support
Personalized health action planning to help you take control of your care
Investment: $995/mo (3 month commitment)
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Recommended for highly complex cases requiring tailored, ongoing advocacy.
For those managing highly specialized or complex medical conditions, our Concierge Advocacy service provides a fully customized level of support. This includes all the benefits of Comprehensive Advocacy, plus:
In-depth case management for rare or multi-system conditions
More extensive provider coordination, including complex treatment plans
Advanced insurance negotiations, including assistance with denials and disability claims
Support for legal/medical documentation needs (such as disability paperwork)
Custom health navigation services based on your unique circumstances
Concierge Advocacy is quoted individually based on your needs, ensuring that you get the right level of support for your healthcare journey.
Call to discuss your care plan
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Need help navigating a specific healthcare challenge? Our Flexible Advocacy Package allows you to purchase 1-10 hours of dedicated support at our standard rate of $150/hour, to be used within three months. Whether it's handling a single insurance issue, coordinating care for a new diagnosis, or researching treatment options, our expert Patient Advocate, Miranda, is here to help—on your terms.
Investment: $150 - $1,500